NIH Research on DS
DS is one of many Research, Condition, and Disease Categories (RCDC) that NIH studies. NIH's research portfolio on DS includes efforts to understand all aspects of the condition, including related health problems and health outcomes. Visit the RCDC website for spending estimates on DS research. You can also review a listing of all DS projects funded by NIH.
In 2018, NIH launched the INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) Project, an NIH-wide effort focused on understanding the health needs of people with DS and their families. The INCLUDE Project serves as an umbrella for coordinating DS research across NIH and the DS Consortium membership.
Visit INCLUDE Project: Funding to find current and past research funding opportunities, projects funded through the INCLUDE Project, and IC research priorities related to DS.
The NIH DS Working Group, DS Consortium members, and organizations and agencies with an interest in DS contributed comments and input to the INCLUDE/DS Research Plan, published in 2020. The plan will help NIH and the DS Consortium coordinate DS research resources and meet INCLUDE Project research goals.
In addition to the INCLUDE Project, these NIH-funded ongoing activities study aspects of DS:
- Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Centers (Led by NICHD)
- DS-Connect®: The Down Syndrome Registry (Led by NICHD)
- Alzheimer's Biomarkers Consortium of Down Syndrome (ABC-DS) (Led by NIA)
- PubMed Search Results for all articles with keyword "Down syndrome"
DS Research from Other Consortium Members
Some members of the DS Consortium also conduct research on DS, while others focus on providing services and support to people with DS and their families. Visit the following DS Consortium member websites to learn about their DS-related research:
- American Association on Intellectual and Developmental Disabilities:
- Association of University Centers on Disabilities: Initiatives
- Alzheimer’s Association: Research
- DS International: International Research
- DS-Medical Interest Group USA: Research & Opportunities
- Global DS Foundation: Research & Medical Care
- International Mosaic DS Association: Mosaicism Research
- Linda Crnic Institute (LCI) for Down Syndrome (University of Colorado School of Medicine): LCI Research
- LuMind IDSC Foundation: Research in Action
- National DS Society: Research & Research Studies
- National Task Group on Intellectual Disabilities & Dementia Practices: Family Research
- Special Olympics International: Research & Evaluation and Research Resources
- TS21 Research Society: Science & Society