Contact Us

The Down Syndrome Consortium website is maintained by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), one of the 27 Institutes and Centers within the National Institutes of Health (NIH).

If you have questions about the Down Syndrome Consortium or Down syndrome research at NIH, please email

  • Members of the news media can contact the NICHD Office of Communications, at 301-496-5133, for information about NICHD news releases about Down syndrome or to schedule an interview with NICHD scientific experts on Down syndrome.
  • The NICHD Information Resource Center provides information to the public on Down syndrome and other health issues within the NICHD research portfolio. Trained information specialists will take your call and direct you to health information, related resources, and materials ordering.
    • Phone: 1-800-370-2943
    • Email:

Web-related and Technical Issues

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Messages sent to the NICHD webmaster are processed Monday through Friday, between 9:00 a.m. and 5:00 p.m., EST, except for federal holidays. We try to respond within 48 hours; however, messages sent late Friday or over the weekend will not be reviewed until the following business day.

Please Note: This website is not intended to provide medical diagnoses or personalized medical advice or a substitute for professional medical care. Instead, it offers resources and information to help people better understand their health and their diagnosed disorders. Staff are prohibited from rating, making referrals to, or endorsing a specific person, healthcare provider, organization, or facility. We urge you to work with your healthcare provider(s) to obtain answers to your specific questions about your personal health.