Down Syndrome: National Conference on Patient Registries, Research Databases, and Biobanks (Historical/For Reference Only)

December 2-3, 2010

Sponsors/Co-Sponsors

Intellectual and Developmental Disabilities Branch (IDDB), NICHD; Global Down Syndrome Foundation

Location

Neurosciences Building, 6001 Executive Boulevard, Rockville, Maryland

Purpose

This conference brought together leaders in the fields of Down syndrome clinical care, advocacy, and research, along with federal partners, including NICHD. The goal of the meeting was to formulate a strategy for establishing and/or integrating patient registries, research databases, and biobanks into Down syndrome research to further advance the science and clinical trials that will benefit individuals with Down syndrome and their families.

For More Information

Agenda

Contact

Dr. Melissa Parisi, IDDB, NICHD
Tel: 301-496-1383
Email: parisima@mail.nih.gov