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NIH The Down Syndrome Consortium Home

Contact Information


Contact Us

The Down Syndrome Consortium website is maintained by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), one of the 27 Institutes and Centers within the National Institutes of Health (NIH). If you have questions about the Down Syndrome Consortium or Down syndrome research at the NIH, please email

  • In addition, the NICHD Information Resource Center provides information to the public on Down syndrome and other health issues within the NICHD research portfolio. Trained information specialists will take your call and direct you to health information, related resources, and materials ordering. Information specialists are available Monday through Friday, 8:30 a.m. to 5:00 p.m. EST.
  • Members of the news media can contact the NICHD Public Communications Branch, at 301-496-5133, or by fax at 301-496-7101, for information about NICHD news releases or to schedule an interview with NICHD scientists.
  • Web-Related and Technical Issues

    Send comments, questions, and feedback about this website to

    Messages sent to the NICHD Webmaster are processed Monday through Friday, between 9:00 a.m. and 5:00 p.m., EST, except for federal holidays. We try to respond within 48 hours; however, messages sent late Friday or over the weekend will not be reviewed until the following business day.


    Please Note: This website is not intended to provide medical diagnoses or personalized medical advice or a substitute for professional medical care. Instead, it offers resources and information to help people better understand their health and their diagnosed disorders. Staff are prohibited from rating, making referrals to, or endorsing a specific person, health care provider, organization, or facility. We urge you to work with your health care provider(s) to obtain answers to your specific questions about your personal health.